Department of AIDS Control (DAC) collects data on components related to HIV/AIDS through various on-line as well as off-line mechanisms including routine monitoring system, HIV Sentinel Surveillance Systems, Behavioral Surveillance Surveys and other evaluations / operations research studies. The main objectives to collect the information through integrated M&E system are to track the progress of HIV/AIDS epidemic in the country and to track performance of National AIDS Control Program and suggest corrective measures if programme divert to main objectives.
Carry out research studies on HIV/AIDS
Since HIV/AIDS issue is now becoming a global epidemiological concern lots of research studies on various complex issues lying in HIV/AIDS are carrying out across the world. Some institutes are exclusively working on HIV/AIDS research. As per DAC’s data sharing guidelines Post graduate and PhD student/scholar, who want to do research in HIV/AIDS field, also give request for data access subject to following the conditions and fulfilling the criteria for carry-out research studies as mentioned in the data sharing guidelines which can be downloaded from www.naco.gov.in
Purpose of Data Sharing Policy
The data collected varies from inventory information to patient disease details. With web-enability, the data can be made available through internet at all levels and to all partners who are involved. The data transfer is gradually shifting from sequential (RU→District→State→National) transfer to direct web transfer so that information is available to all simultaneously. Adequate measures for data security are in place for restricting access by giving various levels of permission. However, due to stigma associated with HIV/AIDS, maintenance of confidentiality is crucial for security and confidence of HIV patients.
Involvement of large number of organizations ranging from government, semi-government, private, civil society, and many more in fighting against HIV/AIDS and interest and support of large number of donors and stakeholders emphasizes need of transparency and availability of data to all those who are involved in the program related to HIV/AIDS. Post graduate and PhD student/scholar, who want to do research in HIV/AIDS field, also give request for data access. The approaches and implementation strategies being adopted by programme pose several operations research questions and researchers in constant need to add to the existing knowledge or create new knowledge require information. The information needs thus vary according to levels and area of work. Looking at the stigma and discrimination faced by HIV infected person and keeping the confidentiality at forefront, there is need to use this data with utmost caution and maturity. Considering the above, this Guideline has been developed.
Documents required for approval of Research
The following documents are compulsory required for research studies:
- The proposal is to be submitted in the prescribed format only (as given in data sharing guidelines)
- The proposal must be approved by the ethical committee
- Certificate of HIV data confidentiality
- The necessary consent of respondent (if PLHIV is included in the study)
- Expected benefits to DAC and GSACS